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Blacks dying for lack of Black organ donors

By Elaina Johnson/Howard University News Service
On March 9, 2015
Bi'ja Thatch

Bi'ja Thatch was one of the luck few to wait only a year on the organ donor list.

Bi’ja Thatch sat nervously beside her mother when her doctor entered through the doors of her hospital room a little over a year ago bearing troubling news. Thatch was diagnosed with a rare, cancer-like disease that causes cells to destroy and damage each other.

Thatch’s only chance of survival was a bone marrow transplant.

Thatch was lucky. It took her a year to find a donor, but she did find one. Every day, however, 20 people in need of transplants die waiting for organs. Ten of them, like Thatch, are African American. In fact, 35 percent of people on the national waiting list for major organs are African Americans.

Thatch, 21, successfully underwent the transplant last July and is in recovery.

“I am so grateful for this transplant because I know many people are not as fortunate as me to make it off the waiting list,” said Thatch. “Transplants are extremely helpful to those fighting fatal diseases.”

Despite the African-American community’s high need for major organs, statistics show they are the lowest ethnic group of registered donors. Blacks comprise only 14 percent of organ donors.

Consequently, African Americans are in desperate need of kidneys for diseases such as hypertension and diabetes, more than any other ethnic group. They also need bone marrow and tissue transplants.

There are numerous accounts of African Americans, some famous and some not so famous, dying for lack of donors.

Jacqueline Donahue, the sister of Grammy Award-winning rapper Nelly, died at a young age despite her family’s four-year attempt to find a bone marrow to help cure her of leukemia.

Shannon Taverez an 11-year-old actress who played Nala on Broadway in the “The Lion King,” died six months after being diagnosed with leukemia when her mother  was unable to find a bone marrow donor.

Dr. Clive Callender

Howard University Hospital’s Dr. Callender works to dispel misconceptions about organ
donation in the African American community.

Dr. Clive Callender, senior transplant surgeon at Howard University Hospital, has seen and heard the stories. In response, Callendar, who performed the first kidney transplants at Howard University and one of the city’s first liver transplants, founded the National Minority Organ Tissue Transplant Education Program, in order to increase the number of blacks who agree to be donors.

Using a $1.2 million study, Callendar discovered there were five reasons African Americans shied away from organ donation: lack of knowledge of organ donation; religious beliefs; fear of being used as a “guinea pig;” fear of being prematurely killed for organs; and mistrust of the medical system.

By working to dispel those myths and misconceptions, Callendar’s organization saw the number of African-American donors in the District of Columbia increase by 125 percent over the past 20 years.

“Many said that minorities would not donate,” said Callendar, “but we have demonstrated that minorities will become a part of the solution to this problem.”

Though progress has been made, Callender says there is still a great need for more African-American organ donors.

Delise Hampton, 21, made a decision to become an organ donor two years ago when she became aware of the African-American community’s needs.

“When I pass away, my organs will be of no use to me,” said Hampton. “It is very fulfilling to know that I will really save someone’s life”.

The Washington Regional Transplant Community (WRTC), organ procurement organization, is dedicated to making sure this goal is achieved. This organization facilitates relationship between donors, donor families, transplant teams and waiting list patients.

It also provides professional education programs to encourage health care professions to get involved in the donation process. They host public education programs designed to promote donor registration and awareness.

“If someone walked up to you and asked if would you like to save a life at no cost to you or your family, most would say, ‘yes,’” said Lesley Compagnone, a manager and spokesperson for WRTC. “That’s what being an organ donor is. When you pass away, you can save up to eight lives. ”

To learn more or to become an organ donor, visit: organdonor.gov/becomingdonor/

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